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100 Trains Voyage for Ataxia.
Raising vital research funds for Ataxia UK

And uniting ataxia sufferers and supporters worldwide!

Starting from London in January 2016, the 100 Trains Voyage for Ataxia is a 50,000km around-the-world train journey; raising vital research funds for Ataxia UK (the official ataxia charity here in the UK); and a uniting vehicle for ataxia sufferers and their supporters globally.

ALL income generated via this website (approx. 5% of the cost of every hotel booking made) helps fund this journey.

Ataxia. So what is it?

Please watch the following 5-min Ataxia UK video. All is explained. As is the amazing work currently being done by Ataxia UK:


Ataxia is the name given to a group of neurological disorders that affect balance, coordination, and speech. There are many different types of ataxia. Ataxia is a rare genetic condition (estimates from recent studies say that there are at least 10,000 adults and around 500 children in the UK with a progressive ataxia).

Progressive? Symptoms get steadily worse. And sadly, there is currently no cure.

But there is good news. Ataxia UK are working very hard to find a cure for one, or all, ataxias by 2020 (their "2020 Vision").

They just need to find the funds first!

A wee bit of history.

And a personal plea from the MD.

All smiles on the Kyle Line, on Day 1 of the original journey.


This is in fact the completion of a journey I first attempted in 2013 (for my own travelling pleasure on that occasion).

The original journey, a lifelong dream of mine, was 18 months in the planning. So it would take a rather catastrophic event to derail.

And catastrophic it was.

I was reasonably able-bodied at the start of the journey (although I was already aware that something "wasn't quite right").

However, by the time I had reached Novosibirsk in Siberia (on the fabled Trans-Siberian Express), I had become rather ill.

After completing 21,000km (so not a bad effort really).

Since returning, it has taken a succession of doctors and neurologists almost 2 years to identify the cause of my illness.

And it's not really good news.

You see, I myself am suffering from a form of cerebellar ataxia.

Ataxia? Never heard of it? Don't worry - neither had I. And we're not alone. Around 91% of the UK population have never heard of ataxia either (one of my aims for this journey, is to put a huge dent in that 91% figure!).

So now I will attempt the entire 50,000km journey again. Only this time, accompanied by my trusty walking stick, I'm making this wee trip to raise vital research funds for Ataxia UK (the national ataxia charity here in the UK); to raise awareness of ataxia in general; and to unite ataxia sufferers and supporters worldwide (there has already been a lot of interest in this journey from around the globe).

Ataxia UK

Ataxia UK is the national charity for ataxia in the UK. They are working very hard to find a cure for one, or all, ataxias by 2020.

Ataxia is a genetic condition that can affect anyone, at any age (just a few years ago, I was a healthy & rather fit young man!).

A cure WILL be found though. Research funds just need to be found first.

So please support the 100 Trains Voyage for Ataxia in any way that you can. Thank you!

100 Trains. Be part of it.
*Paypal will convert to your currency of choice.




Links:

Ataxia UK (national charity) - Website - Twitter - Facebook

100 Trains Voyage for Ataxia - Website - Twitter - Facebook

The UK Hotel Network - Website - Twitter - Facebook


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4. The retailer pays us a small amount for every sale made this way.

5. ALL income received is used to fund the 100 Trains Voyage for Ataxia.


Thank You for your very kind support!


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